International PNH Interest Group, Max Foundation Join Forces to Improve Global PNH Care

The International PNH Interest Group (IPIG) and the Max Foundation have begun a new collaboration to improve paroxysmal nocturnal hemoglobinuria (PNH) care in 53 countries with limited health care resources. The Foundation announced this new cooperative endeavor in a press release.

“Creating sustainable access to treatment requires overcoming multiple barriers in low-resource countries, and the addition of IPIG’s deep expertise in the care and management of people living with PNH gives us confidence in our ability to support hematologists in our network to diagnose and treat these patients,” commented Max Foundation CEO Pat Garcia-Gonzalez.

IPIG, a professional society to improve PNH management globally, will work specifically with the Foundation’s Humanitarian Partnership for Access to Critical Treatments. The Partnership pools the resources of clinicians, businesses, and nonprofit organizations to improve care and care access for patients with serious diseases around the world.

Within the Partnership, IPIG’s experienced clinicians will provide on-the-ground medical education and training for health care personnel, as well as foster stakeholder relationships to enhance PNH care. As they do so, they will be supported by the Foundation’s material resources as a major international nonprofit provider of new therapies and care support.

“We are thrilled to witness a groundbreaking milestone: after a 20-year delay, specific treatments for PNH are finally becoming accessible to patients in low-resource countries. We extend our heartfelt gratitude to The Max Foundation for their tireless efforts in making this achievement possible,” remarked IPIG President and Chair Antonio Risitano, MD, PhD.

Source

The Max Foundation (Max) and the International PNH Interest Group (IPIG) announce collaboration to improve care and management for people living with paroxysmal nocturnal hemoglobinuria (PNH) in low-resource countries. Press release. PR Newswire. December 18, 2024. Accessed January 7, 2025.